tag:blogger.com,1999:blog-8687311516912070833.post6508312187051103703..comments2023-08-27T04:24:05.942-05:00Comments on Dan's Life: Why I think that doctor is wrong.Danhttp://www.blogger.com/profile/15199596711077665973noreply@blogger.comBlogger4125tag:blogger.com,1999:blog-8687311516912070833.post-24914962972431784772008-11-16T06:40:00.000-05:002008-11-16T06:40:00.000-05:00Hi, I'm Danielle's friend.As someone who is very f...Hi, I'm Danielle's friend.<BR/><BR/>As someone who is very familiar with head pain (chronic complex migraine with occipital neuralgia), I'm here to agree with everyone and say DO NOT GIVE UP. <BR/><BR/>Besides the pain in your head, prolonged CFS pressure on your eyes can cause permanent damage to your vision. <BR/><BR/>There are a gazillion Chiari websites out there now. Heck, Extreme Makeover built a house for a family that had it. I'm sure that a bunch of them will have information on how to get in to see a specialist in Chiari. <BR/><BR/>Make it your first priority after the move, because getting in to see these types of specialists can take months and months. <BR/><BR/>Good luck with the move! <BR/>LauraThe Signalhttps://www.blogger.com/profile/14062903305083687813noreply@blogger.comtag:blogger.com,1999:blog-8687311516912070833.post-86611540775705027622008-08-21T21:05:00.000-05:002008-08-21T21:05:00.000-05:00Hey Dan ~ keep looking for a doctor who will look ...Hey Dan ~ keep looking for a doctor who will look you in the eye and listen to you ~ really listen to you! If you can get to NY ~ The Chiari Institue or see Dr. Oro in Colorado ~ they are the experts. Don't lose hope ~ you are not alone in this journey ~ hugs ~ Lace<BR/>http://livelovelaugh-lace1013.blogspot.com/lace1070https://www.blogger.com/profile/15930420458484842948noreply@blogger.comtag:blogger.com,1999:blog-8687311516912070833.post-86088447494927655472008-08-21T09:26:00.000-05:002008-08-21T09:26:00.000-05:00Dear Dan,I commend you for taking responsibility f...Dear Dan,<BR/>I commend you for taking responsibility for your own health and not just blindly trusting the first surgeon you saw! I was happy to read you are contacting the experts at the Chiari Institute. I wish I would have seen an expert instead of trusting a general neurosurgeon for my decompression surgery! I ended up permanently disabled when it was all said and done. Hang in there and stay strong! Christine from WI<BR/>P.S. My blog has my personal story on it (in just one entry) but is more of a reference library of good information about Chiari. I think you would find it helpful. Here's the address if you would like to check it out! http://christineschiariblog.blogspot.com/Anonymoushttps://www.blogger.com/profile/10623850006758396455noreply@blogger.comtag:blogger.com,1999:blog-8687311516912070833.post-56750639873158708392008-08-21T04:38:00.000-05:002008-08-21T04:38:00.000-05:00you need to go to a Chiari specialist to find out ...you need to go to a Chiari specialist to find out for sure . They are all over the USmy lifehttps://www.blogger.com/profile/08616374612910238139noreply@blogger.com